The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.
The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.
Your letters and phone calls make an incredible impact. Ask your representative to sign on to a Dear Colleague letter by Tuesday, March 24th, in support of Usher syndrome research.
USA Today helps shine a spotlight on Usher syndrome in Mediaplanet's Vision & Hearing Health supplement.
The ground has shifted for Usher syndrome research.
This blog has always been about families. Sure we talk about the science of Usher syndrome, the politics of Usher syndrome, the funding of Usher syndrome, but all of it, in the end, comes back to the impact of Usher syndrome on families.