The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.
The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.
Laboratory Named in Honor of William Kimberling, Ph.D.
The 7th Annual Usher Syndrome Family Conference is an opportunity to connect with the Usher community, engage with researchers and learn the latest about causes, management and treatments of Usher syndrome.
Born blind, Willie Bivins began losing his hearing as a child. Today, at age 64, he is celebrating renewed ability to connect with his friends and family thanks to the Braille Edge 40, Apple iPad and Bluetooth keyboard he received through iCanConnect.
Humbled and awed.