The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.
The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.
The next International Symposium on Usher Syndrome will be held in conjunction with our sixth Usher Syndrome Family Conference in Boston, Massachusetts, July 10-12, 2014.
Getting ready for this year's International Symposium on Usher Syndrome? Download the #USH2014 Mobile App on your iPhone, iPad or Android today!
Meet Rachel. She'll be taking over our Twitter handle for the next few days and can't wait to live tweet the symposium.
At the International Symposium on Usher Syndrome next week, I will get a glimpse at the future.