The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.
The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.
Getting ready for this year's International Symposium on Usher Syndrome? Download the #USH2014 Mobile App on your iPhone, iPad or Android today!
This Sense-funded report by Dr. Liz Ellis and Dr. Liz Hodges presents the lives of people with Usher syndrome, showing the impact of the diagnosis across all areas of their lives.
Research is moving by leaps and bounds and just about everyone left the conference filled with hope and enthusiasm.
The largest gathering of the Usher syndrome community in history. Three days, four nights, nearly fifty speakers, dozens of interpreters, and more than three hundred attendees. The International Symposium on Usher syndrome, #USH2014, is now history.