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The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.

The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.

  • If I Knew Then What I Know Now

    'Extraordinary is my ordinary.' Kate Morell returns to the Usher Syndrome Blog. Each post, a chapter in her story. Her journey, from Katie to Kate.

  • Thank you, Bill

    Mark Dunning's speech at the dedication of William J. Kimberling Usher Research Lab.


Usher Syndrome Coalition Members: