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There is news on Usher syndrome daily. Learn the latest here in Information Corner
Potential Treatments and Research There are lots of research projects under way that could potentially produce Usher syndrome treatments. Even seemingly unrelated research might have a profound effect on Usher syndrome. Learn about it here.
News and Announcements Coalition members are active in a lot of areas beyond research. Learn about the events, successes, announcements, and fund raisers in news and announcements.
Usher Syndrome Blog Mark Dunning is the father of a ten year old daughter with Usher syndrome and a founding member of the Coaltion for Usher Syndrome Research. Jennifer Phillips is a research biologist specializing in the molecular cell biology of Usher syndrome. Together they discuss how science and research effect Usher families.
Life with Usher Learn about living with Usher from Usher families. Life with Usher contains individual success stories as well as blogs and twitter accounts maintained by families with Usher. This is life with Usher as those with Usher see it.
Presentations Informative presentations given by Coalition members at recent events. |
