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HearSeeHope is a founding member of the Coalition for Usher Syndrome Research and has funded many Usher Syndrome projects, including the creation of this Coalition web site. HearSeeHope is dedicated solely to providing financial resources to support Usher syndrome projects. As such, they do not fund research in to other disorders, choosing instead to direct funds donated to HearSeeHope to Usher Syndrome research based on the recommendations of the leading experts in the Coalition and beyond.
Click here for more information on supporting HearSeeHope
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Since it’s inception in 1971, the Foundation Fighting Blindness has raised more than $300 million dollars for research to provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher Syndrome, and the entire spectrum of retinal degenerative diseases. The Foundation Fighting Blindness has funded some of the most critical breakthroughs in the treatment of retinal diseases. One note: Since the Foundation Fighting Blindness provides funding for a number of different disorders, you should specify that your donation is to be targeted for 'Usher Syndrome related research' if that is your desire.
Click here for more information on supporting the Foundation Fighting Blindness.
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The Decibels Foundation is dedicated to helping children with hearing loss live happier lives. Programs funded by the Decibels Foundation support kids from birth to the time that they enter a mainstream environment and beyond. More importantly, they help the kids indirectly by first helping their parents learn how to raise a child with hearing loss then helping school systems understand what it takes to educate a child with hearing loss.
Click here for more information on supporting the Decibels Foundation.
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The Carver Family Center for Macular Degeneration at the University of Iowa encompasses the John and Marcia Carver Nonprofit Genetic Testing Laboratory, which is dedicated to providing non-profit genetic testing for rare eye diseases. The lab incorporates the latest research information along with the tests, which provides the most clinically relevant information to patients and their families while keeping tests affordable.
Click here for more information on supporting the Carver Family Center at the University of Iowa.
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The most important goal of the Usher Syndrome Foundation is to generate financial resources to support Usher Syndrome research programs. Programs funded by the Usher Syndrome Foundation focus on the development of treatments that will slow the affects of this disease, stop the deterioration of retina cells and reverse the effects of Usher Syndrome.
Click here for more information on supporting the Usher Syndrome Foundation.
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