You are not alone.
For information about the Usher Syndrome Coalition and the resources available to you, please email info@usher-syndrome.org or contact Julia Dunning at j.dunning@usher-syndrome.org
You can also reach us by phone:
Toll-Free: (800) 946-9203, Option 0
VP: 631-533-9621
Or by mail:
Usher Syndrome Coalition
9 Cornerstone Square, Suite 400-224
Westford, MA 01886