In 2023, the Usher Syndrome Coalition launched the idea of hosting virtual or in-person "USH Local Socials." This initiative was created in direct response to the Usher community's request to meet others in their home communities. Some USH Ambassadors organized in-person meetups. Others hosted virtual meetings on Zoom. In communities where families live in the same city, a few families met for dinner. 

We will add locations and events here as information becomes available. If you are interested in hosting an USH Local Social in your area, reach out to your USH Ambassador. If your state/country doesn't have an USH Ambassador, contact us at info@usher-syndrome.org.

Past Events:

  • The USH Ambassadors for Canada were able to get the CN Tower in Toronto to display the colors of the Usher Syndrome Coalition 0 blue, gold, and white - on Usher Syndrome Awareness Day. Several individuals from the Usher community traveled to the Tower to witness this incredible accomplishment and to spend time together.

  • USH Ambassador Divya Goel met with the deafblind communities in each country and led workshops for interpreters, families, and the communit.

  • Jacksonville, Florida, August 5, 2023

    This is the second of 3 Florida Usher Syndrome Local Socials being planned for this summer. Come meet other individuals with Usher syndrome and their families. We can enjoy lunch and have fun getting to know each other. And learn more about what’s going on with the Usher Syndrome Coalition this year! NOTE: Attendees are responsible for their own transportation, meal, and CoNavigator/SSP services.
    When: August 5th, 11:30 am
    Where: Joe's Crab Shack
    6 Beach Blvd
    Jacksonville Beach, FL 32250

  • Carnation, Washington, August 18-19, 2023

    Hear See Hope/Lane of Inquiry will be hosting a 2-day event focused on education and connection. On Friday afternoon, Rebecca Alexander will be leading a discussion on mental health and Lane McKittrick will be leading a discussion on IEP Development. Saturday, a social with lunch will be held at the McKittrick family ranch. A nearby hotel block is available. For more information, see the registration website.