USH Yellow Book

The USH Yellow Book is a centralized directory of clinicians, specialists and resources worldwide.

Here you will find clinicians, specialists and support providers who are all familiar with Usher syndrome, as well as resources for genetic testing.

To start your search, select the Area of Specialization you're interested in, along with your desired country and/or state, from the dropdown menus below. Click a result for more details and contact information. To see the entire expert directory, simply leave all fields blank and hit "Search." 

Find a Specialist:

Area(s) of Specialization

Areas of Specialization - Definitions

  • Audiologist - Adult

    Health care professional who identifies, assesses and manages disorders of hearing, balance and other neural systems

  • Audiologist - Pediatric

    Health care professional who identifies, assesses and manages disorders of hearing, balance and other neural systems in children

  • Certified Genetic Counselor

    Expert in medical genetics and counseling who guides and supports individuals and families looking for information about how inherited conditions might affect them

  • Clinical Geneticist

    Doctor who diagnoses and manages families with genetic disorders

  • Low Vision Specialist

    Doctor of optometry or ophthalmology trained to offer advice and improve the quality of life of people diagnosed with low vision

  • Mental Health Professional

    Professional who diagnoses mental health conditions and provides treatment. Ex: Psychotherapists/Therapist/Counselor

  • Ophthalmologist - Adult

    Medical doctor who can perform medical and surgical interventions for eye conditions

  • Ophthalmologist - Pediatric

    Medical doctor who can perform medical and surgical interventions for eye conditions in children

  • Orientation & Mobility (O&M) Specialist

    Professional who teaches people who are blind or visually impaired strategies and skills for safe, efficient, and effective travel in both indoor and outdoor environments

  • Otolaryngologist/Ear, Nose, and Throat - Adult

    Medical doctor who provides surgical or complex medical treatment for ear, nose and throat disorders

  • Otolaryngologist/Ear, Nose, and Throat - Pediatric

    Medical doctor who provides surgical or complex medical treatment for ear, nose and throat disorders in children

  • Physical Therapist

    A movement expert who improves quality of life through prescribed exercise, hands-on care, and patient education.

  • Retinal Specialist

    A medical doctor who has specialized in ophthalmology and sub-specialized in diseases and surgery of the vitreous body of the eye and the retina.

  • Support Group

    A group of people with common experiences or concerns who provide each other with encouragement, comfort, and advice

  • Usher Syndrome Researcher - Balance

    A scientist focused on studying Usher syndrome, with a specific emphasis on understanding and treating balance-related (vestibular) issues associated with the condition.

  • Usher Syndrome Researcher - Hearing

    A scientist dedicated to studying Usher syndrome, with a specific focus on understanding the auditory aspects of the condition, including hearing loss and related mechanisms.

  • Usher Syndrome Researcher - Vision

    A scientist dedicated to studying Usher syndrome, with a specific focus on investigating the underlying genetic and molecular mechanisms, developing diagnostic methods, and working towards finding treatments or therapies to improve vision and quality of life for individuals affected by USH.

  • Vestibular Specialist

    Healthcare professional trained to address balance issues