Lorne Marin
Lorne Marin
Private Eye, 2014
Stoneware Plate
25.5 cm X 20.3 cm
This piece will be shipped to the individual making the largest donation through this page before Wednesday, September 23, 2015 at 4:22 AM EDT when the autumnal equinox arrives here in Toronto. I'll be contacting all donors personally as soon as possible after receiving notification of a contribution.
The autumnal equinox marks the start of days that contain more darkness than light. It is a powerful metaphor for both the threat of Usher syndrome and the state of Usher syndrome research. I was diagnosed with retinitis pigmentosa in 1971. Over thirty years later I was told I have Usher syndrome Type 3. Moira Shea described the visual loss process of RP as being like falling down a series of cliffs. I’ve fallen down a lot of cliffs since 1971. I’m still getting up, brushing myself off and preparing for the next climb. And the next fall.
In honour of the first global Usher Syndrome Awareness Day on September 19th, I'm embarking on an Own the Equinox stair climb. I will climb 2500 flights over the 25 days preceding this milestone event and introduce the world to my USH family. On the 26th day, I'll join the Team USH marathoners in spirit as they complete one of the most difficult marathon courses in the world by climbing one mile, 528 flights of stairs.
Help us Own the Equinox for the hundreds of thousands of families world-wide who live with Usher syndrome. Together, we can make Usher syndrome history. #USHEQX
