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There is currently no cure for Usher syndrome.

You have the power to change that.


If you are 70½ years old or older, you can take advantage of a simple way to benefit the Usher Syndrome Coalition and receive tax benefits in return. Learn more.

Your gift will help us support and educate families, expand the USH Trust and use the power of an energized community to raise awareness and increase funding for Usher syndrome research. By investing in the Coalition, you help us link researchers to their greatest resource: people with Usher syndrome.

Questions? Want to donate by phone? 

Call: 1-978-637-2625

Or donate by mail:

Usher Syndrome Coalition
63 Great Road, Suite 207
Maynard, MA 01754