Become an USH Visionary.

There is currently no cure for Usher syndrome. You have the power to change that. 

Your monthly gift as an USH Visionary enables us to:

With your recurring gift, you will:

  • Build and connect the global Usher syndrome community; 
  • Speed the search for treatments by linking researchers to their greatest resource: people with Usher syndrome, 
  • Provide accessibility for all, leaving no one behind.

Become an USH Visionary and join a community of supporters who understand the importance of making a long-term commitment to the Coalition's community-building efforts.

Together, let's make Usher syndrome history.


Your gift will help us support and educate individuals and families, expand the USH Trust, the largest international contact database of individuals with Usher syndrome, and use the power of an energized community to raise awareness and increase funding for Usher syndrome research. By investing in the Coalition, you help us link researchers to their greatest resource: people with Usher syndrome.

Questions? Want to donate by phone? 

Call: 1-800-946-9203

Or donate by mail:

Usher Syndrome Coalition
9 Cornerstone Square, Suite 400-224
Westford, MA 01886