11th Annual USH Connections Conference, July 13, 2019 | Philadelphia, Pennsylvania

10th Annual USH Connections Conference / International Patient Symposium, July 21, 2018 | Mainz, Germany

9th Annual Connections Conference Transcript and Presentations, July 15, 2017 | Chicago, Illinois

The USH2016 Family Conference Transcript

"A combined cochlear and vestibular prosthesis for the treatment of Usher syndrome" presentation delivered by James Phillips, PhD, at the 2016 Usher Syndrome Family Conference.

"Hearing Loss and Usher Syndrome" presentation delivered by Kathleen Sie, MD, at the 2016 Usher Syndrome Family Conference.

"Deconstructing disease genes: How zebrafish models of Usher syndrome can help develop therapies for vision loss" presentation delivered by Jennifer Phillips, PhD, at the 2016 Usher Syndrome Family Conference.

"Unraveling Usher Syndrome: The role of genetic testing" presentation delivered by Karmen Trzupek, Certified Genetic Counselor, at the 2016 Usher Syndrome Family Conference.

The USH2015 Family Conference Transcript

"Protecting and Restoring Sight; How Novel Molecular Principles Can Be Harnessed" by Nicolas G. Bazan, MD, PhD

"Advances in Drug Therapy for Usher Syndrome" by Jennifer J. Lentz, PhD

"Staying Alive: Saving the Retina through Neuroprotection" by Ben Shaberman, Director of Science Communications at Foundation Fighting Blindness, presented at the USH2015 Family Conference

The Transcript from the Family Conference held at the International Symposium on Usher Syndrome

Full Transcript - Usher Syndrome Family Conference 2013

"Gene Therapy for Usher Syndrome (and other treatments)" presentation delivered by Dr. Mark Pennesi at the 2013 Usher Syndrome Family Conference.

"Genetics of Usher Syndrome" presentation delivered by Karmen Trzupek at the 2013 Usher Syndrome Family Conference.

"Hearing Loss and Usher Syndrome" presentation delivered by Dr. Kathleen Sie at the 2013 Usher Syndrome Family Conference.

"Usher Syndrome: Connecting Genes to Disease" presentation delivered by Dr. Jennifer Phillips at the 2013 Usher Syndrome Family Conference.

"Hope and Building an Usher Syndrome Community" presentation delivered by Mark Dunning, Chairman of the Coalition for Usher Syndrome Research.

"Vestibular Function and Usher Syndrome" presentation delivered by Dr. James Phillips at the 2013 Usher Syndrome Family Conference.

"Usher Syndrome: Close to a Cure?" presentation delivered by Dr. William Kimberling at the 2012 Usher Syndrome Family Conference.

Dr. Margaret Kenna is an otolaryngologist at Children's Hospital in Boston. She spoke about what we know about progressive hearing loss in patients with Usher syndrome.

Mark Dunning is the Executive Director of the Coalition for Usher Syndrome Research. He spoke about the Coalition's efforts and how families with Usher can be involved.

"The Connection Between Families and Research" presentation delivered by Mark Dunning, Executive Director of the Coalition for Usher Syndrome Research, at the 2011 Usher Syndrome Family Conference.

"The Genetics of Usher Syndrome" presentation delivered by Dr. Heidi Rehm at the 2011 Usher Syndrome Family Conference.

"To Diagnose or Note to Diagnose: That is the Question?" presentation delivered by Dr. Margaret Kenna at the 2011 Usher Syndrome Family Conference.

"Usher Syndrome: Close to a Cure?" presentation delivered by Dr. William Kimberling at the 2011 Usher Syndrome Family Conference.