As government and NIH funding decisions unfold, we remain committed to advocating for continued progress in research efforts that are critical to our community. We want to assure you that the Usher Syndrome Coalition is working closely with other Usher syndrome organizations to monitor developments related to government and NIH funding and the potential impact on Usher syndrome research.
In addition to supporting research, ensuring accessibility for ALL individuals with Usher syndrome remains a top priority. We will continue to uphold and advocate for accessibility in all aspects of our work, ensuring that our community remains informed, empowered, and included.
We will keep you updated as we learn more and appreciate your ongoing support in advancing research, accessibility, and resources for individuals with Usher syndrome.
