Welcome Parents!

Welcome to the Parent section of the Usher Syndrome Coalition website. When parents learn that their child or children have Usher syndrome, it usually comes as a shock. In most cases, there is no one else in the family with Usher syndrome. Parents may experience a broad range of feelings and wonder what to do. You are not alone. Other families are on this journey too. There is a community of parents who have "been there," survived and thrived. The information on this page will help to familiarize you with resources and tools to support you, your child, and your family.