Resources for Youth with Usher Syndrome

Resources for young adults with Usher syndrome:

Just for Young Adults, on our website, includes stories/suggestions from college age students
A FB group where young adults can communicate privately with each other on topics relevant to them. It is facilitated by one of our USH ambassadors. Email: info@usher-syndrome.org
Our USH Partner, Ava's Voice, hosts USHthis Summer Youth Camp for youngsters with Usher syndrome, ages 11-14. Youth with Usher syndrome, ages 15-17, can apply to be counselors in training, and young adults with Usher, ages 18 to 24 can apply to be lead counselors. Ava's Voice is an official partner of the Usher Syndrome Coalition. For more information about camp, go to Ava's Voice FB page
Sign up for our USH Trust registry, the largest international registry exclusively for the Usher community. It will assure that you get the latest info on research and will also help to and connect the Usher community across the country and around the world
Annual USH Connections conference. Presentations and live group events. Participants can connect with each other via a mobile app or in person.
Information in ASL: The "first-ever" series of 25 short ASL videos about Usher syndrome, presented by Kevin Richmond, an adult with Usher. Also includes several scientific USH Talks translated into ASL by native Deaf signers.
The National Deaf Center for Postsecondary Outcomes has a wide range of resources for young adults.
Transition Tips in ASL from the Disability Law Center
An SSP White Paper