Self-Advocacy
Are you a student with Usher syndrome? Would you like to share your experiences about self-advocacy? Contact us here: info@usher-syndrome.org
Self-advocacy is one of the most fundamental skills anyone can learn especially at a young age. By learning self-advocacy, you are taking charge of your own actions and needs to ensure success for college, career, or any future endeavors. Self-advocacy can range from taking initiative to not only introduce ideas but to implement them. Examples can include creating a group to advocate for students with disabilities; fundraising for Usher syndrome research; or explaining to people what your disability is and your needs.
Experiences from Young Adults in the Usher Community
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Check out Ethan Morrobel's article, "An Uncomfortable Life: Getting Comfortable with Being Uncomfortable" in the April edition of Exceptional Parent magazine, page 38.Ethan is a college student with Usher syndrome.
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My Experience and the Importance of Self-Advocacy, written by Ava Bullis, a high school student with Usher syndrome.
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"Instead, I am the person who, upon realization, does not see Usher as a threat. I am the kind of person who takes action, the person who reaches out, who is motivated, who is resilient, who knows that there is some solution out there regardless of how awful the situation seems." Read more about Brendan Creemer's experience.
