USH Connections Conference

July 8-9, Austin, Texas + Online

If cost is an obstacle, please reach out to Julia at j.dunning@usher-syndrome.org.

In 2022, the Usher Syndrome Coalition hosted our 14th USH Connections Conference, the largest gathering of our global Usher syndrome community.

Attendees described this conference as "life-changing," an event with a positive atmosphere and a genuine sense of community. At the USH Connections Conference,  hundreds of people who "get it" can connect, while discovering valuable resources and learning the latest on developing treatments from leading Usher syndrome researchers. 

This event was held in Austin, Texas, for those who could join in person, and live-streamed for those who prefered to attend online. USH2022 participants had the choice to register for VIRTUAL or IN-PERSON access:

• Virtual attendance provided access to presentations, event app, engagement, and connection opportunities at the USH2022 hybrid event.
• In-person registration was ALL-INCLUSIVE, providing Friday afternoon breakout sessions, Saturday full-day conference, continental breakfast, refreshment break, lunch, and evening social (dinner and drinks). 

NEW FOR USH2022

Breakout Sessions on Friday, July 8th
This year, we are pleased to announce that we added an afternoon of in-person breakout sessions on Friday, July 8th. These sessions were created in direct response to requests from the community for opportunities to connect and converse in small settings. 

REGISTER

Registration for USH2022 is now open. 

In-person tickets are all-inclusive, providing access to Friday afternoon breakout sessions, Saturday full-day conference, continental breakfast, refreshment break, lunch and evening social (dinner and drinks). 

If cost is an obstacle, please reach out to Julia at j.dunning@usher-syndrome.org.

If you need assistance registering online, you can call the Usher Syndrome Coalition at (800) 946-9203 or email Julia at j.dunning@usher-syndrome.org.

INCLUSION AND ACCESSIBILITY

• Participants are encouraged to bring their own Support Service Provider (SSP) if needed. The conference registration fee will be waived for personal SSPs. A limited number of volunteer SSPs will be available upon request.
• Please include requests for close vision and tactile/ProTactile interpreters and/or an assistive listening device in your registration. Platform interpreters and CART live captioning will be provided at the general session for the benefit of all. 
• Spanish spoken language translation will be provided.
• AI-powered interpretation into 20+ languages on your personal device will be provided.
• Conference materials will be available in a digital format designed for screen reader-braille display and low vision. The final conference agenda will be available two weeks before the conference on the event website and app.

PLEASE NOTE: The deadline to submit requests for special accommodations, ie. interpreters, sighted guides, assistive listening devices, childcare, dietary restrictions, etc. is June 3, 2022. Participants are encouraged to bring their own SSP if needed. The conference registration fee will be waived for personal SSPs. A limited number of volunteer SSPs will be available upon request.

IN-PERSON LOCATION AND ACCOMMODATIONS

Austin Southpark Hotel
4140 Governors Row
Austin, Texas 78744

The Usher Syndrome Coalition has secured a reduced rate of $119/night at the Austin Southpark Hotel. Our in-person events take place Friday, July 8 and Saturday, July 9. 

Click here to reserve your room by June 17, 2022 to ensure rate and availability. You may also call 1-888-236-2427 or 1-844-631-0595 and ask for Group name "Usher Syndrome Coalition" OR Group Code "US1." 

USH2022 IMPORTANT DEADLINES

June 3, 2022: Special Requests (childcare, interpreters, SSPs, assistive listening devices, etc.)
June 17, 2022: Hotel Reservations. Reserve your room at the Austin Southpark Hotel at the reduced rate of $119/night here. 
June 30, 2022: Registration Cancellations. Written cancellations received by June 30th will receive a full refund. No refunds will be issued after June 30, 2022.
June 30, 2022: Registration Deadline

COVID-19 GUIDELINES
The health and safety of our community remain our top priority. The USH2022 planning team will be closely monitoring COVID-19 developments, along with related government mandates, CDC guidelines and public health advancements. We will provide updates as needed.

USH2022 REFUND POLICY
Written cancellations received by June 30th will receive a full refund. No refunds will be issued after June 30, 2022. All refund requests must be submitted in writing to Julia at j.dunning@usher-syndrome.org.

QUESTIONS? Call us at (800) 946-9203 or email Julia at j.dunning@usher-syndrome.org