USH Local Social: New England
RESCHEDULED for Saturday, September 16, to open up the social to more people in the community in honor of Usher Syndrome Awareness Day!
All in the Usher community are welcome to attend the New England “USH Local Social,” including individuals with Usher syndrome, parents of children with Usher syndrome, spouses, family members, etc. This event will allow individuals and families to join this "meet and greet" and participate in various workshops led by individuals with Usher syndrome.
The Usher Syndrome Coalition is hosting this event in collaboration with the Usher Syndrome Society, a nonprofit that uses storytelling through the arts, educational events, and collaboration to raise public awareness and research funds towards finding treatments and a cure for Usher syndrome.
PLEASE NOTE: The deadline to submit requests for ASL interpreters is September 1, 2023.
Workshops:
EVENT INFO
Tickets include access to all classes and reception (light refreshments and drinks)
Early Bird Rates (Through August 15)
$60 Per Adult
$25 Per Child, age 9+ (with adult supervision)
General Admission (August 16-September 16)
$75 Per Adult
$35 Per Child, age 9+ (with adult supervision)
If cost is an obstacle, or to inquire about our Family Discount (for households of 3 or more), email Julia at j.dunning@usher-syndrome.org.
DATE
September 16, 2023
TIME
1:00-5:00 PM
VENUE
SoWa Power Station
Mezzanine (Side Door)
540 Harrison Avenue
Boston, MA 02118
ACCESSIBILITY
Participants are encouraged to bring their own Support Service Provider (SSP) if needed. The USH Local Social registration fee will be waived for personal SSPs. If you live in Massachusetts and need an SSP, ask your Massachusetts Commission for the Blind (MCB) case manager to fill out the referral form and send that to Jonathan Lejeune at jlejeune@deafinconline.org. DBCAN will process the request to provide SSP or CN services. Requests need to be coordinated two weeks in advance of the event. For participants in other states, please check your USH Ambassador page to see if your state has an SSP-coordinating agency.
DEADLINES
September 1, 2023: Special Requests (interpreters, SSPs)
September 10, 2023: Registration Deadline
USH LOCAL SOCIAL NEW ENGLAND REFUND POLICY
Written cancellations received by September 10th will receive a full refund. No refunds will be issued after September 10, 2023. All refund requests must be submitted in writing to Julia at j.dunning@usher-syndrome.org.
QUESTIONS?
Call us at (800) 946-9203 or email Julia at j.dunning@usher-syndrome.org.
