Usher syndrome is the most common genetic cause of combined deafness and blindness.

Discover the progress in research to develop treatments.

We summarize the latest science news and "What it means for Usher syndrome." Read Science News by treatment approach or Usher subtype.

Usher syndrome page at clinicaltrials.gov

Find the answers to the questions most commonly asked about Usher syndrome.

Genetic testing is the only way to know for sure if you have Usher syndrome. Genetic confirmation can help you understand your type of USH. Genetic confirmation of your diagnosis is also necessary to qualify you for research (clinical trials).

The USH Trust is a simple, confidential, and free database of individuals who have Usher syndrome - any age, any type, anywhere in the world. It is our most powerful tool to connect the community, and - for those who are interested - to connect the community to research. Researchers have told us that without a robust pool of potential participants, clinical trials will literally not be possible. So, if accelerating research is your passion, join the USH Trust!