• Usher Syndrome Coalition

    The Usher Syndrome Coalition is in touch with individuals, families, professionals, researchers, and Usher-related organizations worldwide. Email us or check out our website to: join our USH Trust, the largest contact database of individuals with Usher syndrome, worldwide and our most powerful tool to building the Usher community; learn about upcoming conferences or local events; connect with others through the USH Blue Book or Discord server; meet your local USH Ambassador; discover our USH partners - organizations that serve the Usher community; and more!
    Email: info@usher-syndrome.org

  • Helen Keller National Center Regional Representatives

    The Helen Keller National Center for Deaf-Blind Youths and Adults is a federally funded agency exclusively serving youth and adults with combined vision and hearing loss in the United States. Find your local representative to learn more.
    Web: https://www.helenkeller.org/hknc/locations

  • National Center on Deaf-Blindness

    Visit the NCDB website to find resources and support for school-age children with combined vision and hearing loss. Find your state deaf-blind children's project; access webinars; participate in online training and more.
    Web: www.nationaldb.org