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ACFOS (Action Knowledge Training for Deafness) is an association specializing in congenital or acquired deafness during childhood. This book describes balance problems associated with deafness in children. This is not an "Usher specific" resource.
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Mark Dunning, father of Bella, writes about one of the "neglected aspects of Usher syndrome" - balance issues associated with Usher syndrome type 1.
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Author Pam Aasen describes the incredibly successful journey of her sons, Ethan & Gavin, as they navigated the balance issues associated with Usher syndrome type 1.
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Presentation delivered by James Phillips, Ph.D., at the 2016 Usher Syndrome Family Conference.
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Brothers Ethan and Gavin are competitive swimmers. They both have Usher syndrome type 1B.