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ACFOS (Action Knowledge Training for Deafness) is an association specializing in congenital or acquired deafness during childhood. This book describes balance problems associated with deafness in children. This is not an "Usher specific" resource.
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Dr. Marly Kenna, Principal Investigator
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Mark Dunning, father of Bella, writes about one of the "neglected aspects of Usher syndrome" - balance issues associated with Usher syndrome type 1.
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Author Pam Aasen describes the incredibly successful journey of her sons, Ethan & Gavin, as they navigated the balance issues associated with Usher syndrome type 1.
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Presentation delivered by James Phillips, Ph.D., at the 2016 Usher Syndrome Family Conference.
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Brothers Ethan and Gavin are competitive swimmers. They both have Usher syndrome type 1B.
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This presentation gives an overview of vestibular and auditory prostheses including how the University of Washington Medical Center is currently evaluating these cutting-edge implanted devices which will hopefully help to improve the quality of life for many with chronic vestibular and hearing loss.
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Dr. James Phillips from the University of Washington's presentation on vestibular function at the USH Connections Conference 2013
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